International Journal of Advances in Nursing Management

Valliammal Shanmugam ¹, Ramachandra ²

Affiliations
1 College of Nursing, National Institute of Mental Health and Neurosciences, Bangalore, IN
2 Department of Nursing, National Institute of Mental Health and Neurosciences, Bangalore, IN

Abstract

This exploratory descriptive qualitative approach was aimed to investigate the requirements of self-care in the health deviations associated with thalassemia in adolescents based on the theoretical framework of Orem; to identify nursing diagnoses in self-care deficits with the support of the International Classification for Nursing Practice and to develop interventions with the adolescent in order to identify deficits in the self-care requirements. A semi-structured interview was applied with 10 adolescents, aged between eight to 13 years, from September to November 2013. The deficits were found in the universal self-care requirement, for developmental self-care, self-care health deviations. Diagnoses were formulated, such as risk for nutritional deficit, ineffective management of therapeutic regimen and deficient health knowledge. The study showed that it is difficult for the adolescent to live with the alterations required by the disease. As the adolescent is not completely capable of responding to the healthcare process, their caregivers need to assume the condition of self-care therapeutic agents.

Keywords

Care Giver/Family, Thalassemia, Nursing, Self-Care.

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Ramachandra ¹, Valliammal Shanmugam ²

Affiliations
1 Department of Nursing, National Institute of Mental Health and Neurosciences, Bangalore, IN
2 College of Nursing, National Institute of Mental Health and Neurosciences, Bangalore, IN

Abstract

An attempt to conquer and eradicate disease is probably a myth. When prevention of disease or curative measures fails, people respond to the "hopeless" situation in their personal way, through either rejection or denial. Usually the chronically or terminally ill patients are neglected as people feel it is waste to spend money, energy and time on their care. More often the ultimate rejection is the denial that such people need the skills and expertise of modern health care. These patients are left to the care of their families, without appropriate professional support. The patient experiences depression as their needs are not met. The care takers find it increasingly difficult to care of the terminally ill person and reacts by seeking avenues for custodial care. The patient may experience being unloved, unwanted and burdensome. In this atmosphere, family members may wish patient to die as early as possible. Few family members may experience guilt. This may also be due to increasing nuclear families and urban life¹.

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