Indian Journal of Health and Wellbeing

Navnit Kumar ¹, C. D. Santosha ¹, Priya Joseph ²

Affiliations
1 Department of Speech Language Pathology, All India Institute of Speech and Hearing, Mysore, Karntaka, IN
2 Lok Nayak Hospital, New Delhi, IN

Abstract

The study aimed to evaluate the QOL of parents of individual with AD, CP and MR in India. It looked into the QOL of parents across socioeconomic class (SEC). A total of 240 parents (120 mothers and 120 fathers) of 120 children with AD, CP and MR were compared with 82 parents (40 mothers and 42 fathers) of 42 age matched neurotypical children. All participants belonged to upper, upper-middle, lower-middle, and upper lower SEC. World Health Organization Quality of Life (WHOQOL) BREF-Hindi was used to assess the different parameters of QOL. Significant effects were found for the diagnosis parents and SEC on the dependent measures of QOL. MR group perceived the QOL to be least impaired whereas the AD group perceived the most impaired across all the parameters. Father of AD, CP and CG perceive significantly better QOL than mothers. In addition, significant differences were found between SEC for AD and CP on some QOL' domains (AD: psychological and environment; CP: psychological). A family with developmental disabilities especially with low SEC requires urgent attention. Special mother of children with developmental disabilities needs more attention and support.

Keywords

Quality of Life, Autism, Mental Retardation, Cerebral Palsy.

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Navnit Kumar ¹, Ankita Kumari ², Nachiketa Rout ³

Affiliations
1 All India Institute of Speech and Hearing, Mysore, IN
2 MASLP, Ali Yavar Jung National Institute for the Hearing Handicapped, Mumbai, IN
3 National Institute of Empowernment of Persons with Multiple Disability, Chennai, IN

Abstract

The present study explores the significant risk factors that might help in early identification of neonates at risk for hearing loss, at places where objective hearing screening instruments were not assessable. Retrospective information from the database of 617 children diagnosed with hearing loss were compared with high risk factors for hearing impairment as recommended by Joint Committee on Infant Hearing (JCIH). Home-delivery (p = .002) was reported amongst 30 % of the data sample. Primary pregnancy (p = .004) and low birth weight (p = .01) were found in 27 % and 25 % of the sample. These Non-JCIH indicators might be used as a screening tool for earliest identification of neonates at risk for hearing loss.

Keywords

Hearing Loss, JCIH, High Risk Factors.

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